So much has happened in the past couple of months, I don't really know where to begin.
I went to the Ophthalmologist a couple of weeks ago for a 6 month follow-up. My eyesight has decreased significantly in the past 6 months. My Ophthalmologist set me up with an appointment with a Retina specialist and a Neurologist.
I told my Oncologist about it and he immediately sent me for an MRI.
The MRI came back showing a large anomaly in my head. He said to cancel the Neurologist appointment, he was sending me straight to a Neurosurgeon - EGAD!
I went to the Neurosurgeon to discuss the results and things aren't looking good.
He said I have a 2cm tumor located between my eyes and up against my brain - Again, EGAD!
He said the entire tumor needs to be removed immediately and then they will do a biopsy to see if it's cancerous.
For now, he's thinking the tumor is the cause of my chronic migraines and rapidly decreasing eyesight as well as some other optical problems that have recently come up.
I will have to spend 1 to 4 days in the hospital with a 6 to 8 week recovery. After the removal, they will do a biopsy to see where to go from there.
The Neurosurgeon has me scheduled for a CT/Angiogram on September 27 and surgery at Grossmont Hospital is scheduled for October 3.
I haven't been admitted to Grossmont Hospital in over 20 years. That was for a ruptured appendix. I waited forever to go to the hospital until I couldn't take the pain any more. By then, all kinds of complications came up, I was in the hospital nearly 3 weeks.
They had me hooked up to all kinds of things with alarms, they were having a difficult time keeping my vital signs up.
I was sound asleep one night when I heard voices, it was Daddy and my Grandma giving me words of encouragement. They were across the room sitting on the A/C unit. Grandma was saying in her Norwegian accent "There, there, things will be all right". Daddy was saying "Come on, I didn't raise no sissy's".
Suddenly, the light in my room came on and a nurse was asking who I was talking to and why is my room so cold. Daddy and Grandma disappeared when the light came on, I was so disappointed that they didn't stay longer. The nurse tapped on the thermostat and called Maintenance. Immediately, the room warmed up to room temperature. The Maintenance guy said the ventilation system feeds all rooms the same, there's no way it could have been so cold in only my room.
All that was left of Daddy and Grandma's visit was some condensation at the bottom of the window.
The next day, my vitals were normal and stayed that way, I was on my way to recovery. By the way, Daddy and Grandma both passed away in the early 80's.
I consider this event to be my most solid experience with "The Beyond". Nobody will ever be able to tell me differently. So I'm sort of cautiously looking forward to surgery in the hopes that Daddy and Grandma will visit me again.
I told the Radiologist about my new tumor developments. I started my second week of Radiation treatments last week with 6 more weeks of treatments. There is concern about my radiation schedule, I'm already 3 months behind.
The Radiologist said we should continue with radiation until something is set for the surgery and then we'll work around it.
He also said it is very uncommon for a Neurosurgeon to say something needs to be removed immediately, so we should put that as the #1 priority.
Okay, now that makes me quite uneasy. They already did a double mastectomy, but sometimes I still use my brain and I don't know about getting any of it removed.
This new development has me spooked.
Now it's on my mind 24/7. I had a sinus headache last night and all I could think of was this tumor being the cause.
I really have no other choice but to wait and see. What I'm really interested in seeing is how my face looks afterwards. The surgeon will pull the tumor out through my nose - YUCK! During the healing, I will look like I ticked off Mike Tyson and got punched in the face. Oh well, Halloween is coming...I can work with this.
To top things off, I tested positive for Covid...Like I really need this along with everything else. You can't imagine the uproar I caused with my medical team when I them "I'm Covid positive, now what".
Covid has some interesting symptoms. Mine is like having a severe cold with a mild flu and some Chemo side effects sprinkled in for fun.
Thankfully after checking my calendar and doing some simple math, I saw that nobody I had contact with over these past few months was at risk.
When I started testing Negative for Covid, I resumed my Radiation treatment. The side effects are so much easier to deal with than the Chemo side effects. With Radiation, I feel very warm, slight headache, nausea and my bones are aching. Along with those, my Oncologist has me on Hormone meds that are giving me 24/7 hot flashes. It seems like getting enough sleep is quickly becoming a distant memory.
So now it's just a waiting game.
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